Sunday, January 17, 2021

Best Ways for Help Someone Suffering From Severe Ulcerative Colitis

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Ways for Help Someone Suffering From Severe Ulcerative Colitis

Like all chronic illnesses, Severe Ulcerative Colitis makes you feel awful (physically and emotionally) and the impact it has on your loved ones is pretty dire too. With the right attitude however, you can make a massive difference to someone’s recovery. If you know someone with UC or IBD, here are a few things you can do to help them through that poxy relapse.

Don’t mention weight gain/loss

one or two weeks ago, I had hamster cheeks and puffy eyelids (thank you, steroids).  soon after that, I got food poisoning and an infection and stray half a stone (thank you, dodgy prawns).Weight fluctuation is something Severe Ulcerative Colitis sufferers should learn to live with, and I spend a lot of my time wishing steroids didn’t bloat me out and that that my crappy suppressed immune system would allow me to be handsome. Losing your appetite and having no energy also wreaks havoc on your emotional well-being.

Let us freak out once in a while

I am screened every 3-5 years for bowel cancer with a colonoscopy/endoscopy procedure.I have an increased risk of developing skin cancer because I take Azathioprine (so I need to be extra careful when sitting out in the sun).If my Severe Ulcerative Colitis becomes uncontrollable in later life, I may need a stoma or some form of operation to remove part, or all of my bowel.

Stay out of the bathroom (and make sure the lock’s working, and there’s toilet paper)

When nature calls, we all have to answer. Bathroom time is private time, and it shouldn’t be interrupted…unless you live with someone who has Severe Ulcerative Colitis .I still live at home (#GrownUp) and there’s six of us sharing two bathrooms, so there’s always one free if I’m not feeling well. Before I was diagnosed, however, we only had one bathroom. During that time, I interrupted a lot of bubble baths, teeth-brushing sessions, and hurried urinations.

Don’t write me off if I have to cancel plans (please?)

There’s nothing I love more than going to gigs, talking about bands, and drinking like a fish until the early hours. This is impossible when I’m ill, and it breaks my heart.I don’t want to cancel tonight’s plans, and I really want to book that holiday next month; but I have to postpone both because I don’t know if I’ll be well enough. At least you can find someone else to go with. I’ll just be sitting here, playing Jeff Buckley’s Grace on repeat, trying not to cry about all the things I’m missing out on.

Laugh

Probably the most important point.Living with and talking about Severe Ulcerative Colitis is painful, and whilst azathioprine and steroids ease the symptoms; laughter is still a necessary and highly effective medicine.No-one likes discussing cameras being shoved up people’s backsides, but if you can crack (no pun intended) a stupid joke about a colonoscopy, people are generally more interested in hearing about your ‘dignity shorts’.

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