When we first started writing the “Unspeakable Bits” blog, I resolved not to candy-coat the difficult parts of living with multiple sclerosis. I’d always intended to open the conversation about end-of-life and Multiple Sclerosis Disease. I decided to broach the subject now, in the wake of the recent passing of our fellow “MSketeer,” Annette Funicello.Social media sites erupted with kind words and remembrances of the actress. Soon, however, confusion began to set in as Disney’s press release attributed her death to “complications from multiple sclerosis.” When a Canadian television video of her last days was broadcast as a remembrance, confusion became fear and concern.
My greatest fear when the dark days have me thinking about Multiple Sclerosis Disease is that it might get “that bad,” but I must admit that I didn’t really know what that means. What does “advanced Multiple Sclerosis Disease” look like? How does MS get to “end stage”? What are these “complications of MS”?As I stated in my first Unspeakable Bits, I have always felt that information is the counter to fear and that with knowledge – even knowledge of the nasty bits – I can make decisions for myself and my family that are based on sound reasoning. I am only qualified to speak from my personal knowledge and perspective when it comes to this sensitive subject. The Society will bring experts and additional information to address other aspects of the conversation on the Multiple Sclerosis Disease Connection blog, much in the same way we covered the controversial subject of medical marijuana last month, to help shed light on this dark corner of MS.