There are key reasons why this is happening. Only by understanding the reasons why endometriosis victims feel guilty.
COMPARING YOURSELF TO THOSE WHO ARE WORSE OFF: I felt guilty for having written those words, because endometriosis is not potentially terminal in the way that cancer is. I know that, although, I recognise that women with endometriosis ‘rub shoulders’, so to speak, with the dreaded disease. An online source claims: Women with endometriosis have an increased risk for development of certain types of cancer of the ovary, known as epithelial ovarian cancer (EOC), according to some research studies.Rather, the dismissive comments of others and their attempts to downplay my suffering made me feel defensive forcing me to retort with these comments.This misunderstood side to Endometriosis and the daily battles that, we, its sufferers have to fight, are the primary reason why more awareness of the disease is so urgently and desperately needed.
IMPACT ON WORK LIFE : My employer, with whom I have a permanent contract of employment, is contractually obliged to support me through a period of illness financially and by adjusting my working environment. So why do I feel guilty about not being able to work? When feeling sufficiently well, I’m a good worker. And yet, when occupational health got involved, a part of me felt guilty as if I’d done something naughty. Or as if I was making it up. It’s just that I wasn’t.Too hasty return to work, left me open to attacks on my attitude, because I found it hard to focus and be productive in the way I’d been in the past. I was trying, but because I looked fine, nobody could see the toll that the severe pain, Endo-fatigue and despair depression had on me and my ability to work.
COMPARING YOURSELF TO THOSE WHO ARE BETTER OFF:Resentment is a powerful negative emotion and is closely associated with the feeling of injustice.
“How dare you tell me not to worry? You don’t know what I’m going through.”
“Easy for you to talk, you’re not the one who’s got to live with chronic pain.”
Such comments, more often than not made through ignorance or frustration rather than ill-wishing, cause hurt and can even lead to open hostility to ‘outsiders’, the uninitiated, who are not ill, and who don’t understand the condition.If these things are said by your sisters, brothers, husbands or friends, the resulting sorrow and anger can create real chasms between you and your loved ones. This is the very last thing you need, at the time when you’re already feeling down and vulnerable.